Some updates from Deepika for you all...Jevesh is still struggling and fighting. On the 31st of December, 2008, The doctors had to take Jevesh off of the nasogastric, NG, (tube through the nose that leads to the stomach) feeding with the breastmilk. With his condition, Jevesh is at risk for what is called Chylothorax, which is, in laymen's terms, a type of fluid build up in the body (this is bad, as fluid retention can lead to congestive heart failure)...They have him receiving doses of lasix, a kind of diuretic, and placed him on a fat free baby formula which he receives through the NG tube.
On January 1st, after 16 days of anxious waiting at his bedside, Deepika was finally allowed to hold Jevesh for the first time since his surgery (to place the shunt). It was a good day.
Imagine for a moment the contrast of 2007 to 2008/2009...a year ago, Amit and Deepika were celebrating their marriage, ringing in the new year in Vegas and then heading to Disney (Amit was the happiest kid of all :) and Deepika was right there with him...The absolute joy to share such love and passion...to have the start of the new year, a new life, with your best friend at your side.. soon, having a second dream come true to find that they would be parents...and less than 12 months later we are looking back with such mixed emotion and utter and complete heartbreak...Amit stolen from Deepika and Jevesh, and all those that cared for him, Jevesh, born in to this world with such hope, now we pray that he does not leave as well.
Now, every day is a blessing and so very precious...and just this friday (01/09), Jevesh celebrated his 1 month birthday...every month will be special...will be celebrated...(and in our hearts, every day is celebrated and cherished, for we do not know what tomorrow will bring).
Sadly, with this blog, I have more unfortunate news to share as the trials and tribulations continue.
On January 5th, oral feeding was attempted for Jevesh...just a small amount, to see if he could swallow and that he could physically handle the feeding (feeding for babies is like jogging for adults). The first and second attempts seemed to go fine, however, the next day, January 6th, Jevesh became ill after the oral feeding (thowing up). Doctors put him back on the NG tube feeding and began conducting tests to see why he could not handle the oral feeding...Preliminary results seem to indicate that Jevesh has malrotation of the intestines (his intestinal track may be twisted or pinched). This malrotation can result in severe intestinal problems including pinching of the blood supply to a portion of the intestinal track (which causes the tissue to die)...if this were to happen, the doctors would have to remove the affected portion of his intestines (and this would also mean the possiblity of long term nutritional issues).
At this time, the doctors are looking to do a surgery on Jevesh some time in the next few days. They will repair the malrotation and treat accordingly (i.e. remove any portion of intestine that may be damaged). Jevesh will be required to continue his stay at the children's hospital, in the intensive care unit, for a minimum of 6 more weeks...
As always, please feel free to leave messages for Deepika on this blog...She does not often get a chance to use her phone as it must be turned off while she is in the ICU which is where she spends most of her time.
Many of you have asked if there is anything you can do...I will talk to Deepika to see what she might need...right now...she is at the Ronald McDonald House, her parents are with her, and she has no immediate needs...It is likely that we will attempt to organize a dinner and silent auction some time in the coming months...We will be auctioning Amit's motorcycle and looking for additional donations...We have no immediate plans but I promise to post more information as it comes...just keep it all in your minds for now...
Thank you all for your kindness and support...you can choose to "follow" the blog as well so that you get updates when new posts are added.
Deepika thanks you all for your kind words and prayers and that right now...what she really needs is to please keep on praying (thinking positive thoughts, sending good vibes, etc)...She misses everyone and wishes she was home...but sadly, that will have to wait ...
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